[cancer] NIH Day Eight
Not so much to report today. We’re in the lull between the main chemo and the TIL infusion/IL-2 therapy. All the things I was grousing about yesterday got fixed except the toilet problem, and I have...
View Article[cancer] NIH Day 9
Yesterday was a weird day. Very tough in some ways, easy in others. I was quite discouraged to jump from a one-hour infusion to about six hours of infusion due to reduced electrolytes, but since I have...
View Article[cancer] NIH Day 10
Getting overwhelmed fast here. Yesterday was busy and spoon-burning both. An hour of deep science talk with Dr. Tranh about how the genetic selection of my TIL cells was done, and why, was sort of like...
View Article[NIH Day 15]
Buy here but winding down now int recovery period. I’m still fat fingering most f what I try to type. This post absolutely included. Friday midday I received 43.3 billion of my TIL cells infused back...
View Article[cancer|personal] Slowly coming back
That was easily the most brutal medical experience of my life. This I say from a life well populated with brutal medical experiences these past six years. I’m so physically deconditioned from three...
View Article[cancer] Struggling with the lead suit, body and mind
I continue to not return email and avoid online chat. This is not a permanent state of affairs, but it will continue for a few days yet. I plead for continued amnesty. My body continues to be a lead...
View Article[cancer|food] How I spend my days
The lead suit slowly improves. So does the giant clamp on my brain. The problem is and continues to be food. The protocol I was on at NIH had the incidental effect of deconditioning me from being able...
View Article[cancer] Quick update re email, comments and social media
As recently discussed here, both my body and my mind are fully occupied with some fairly serious food issues, post-treatment. As such, I am very dilatory about responding to email, blog comments or...
View Article[cancer] Still alive, still low bandwidth
Because people keep asking, I am still very low bandwidth on email and social media as explained before. Lisa updates here. I’ll be back when I can focus. The post [cancer] Still alive, still low...
View Article[cancer] Which way am I going?
Just had another slo-mo meltdown with the gracious Lisa. I am having a very hard time. Part of the problem right now is we can’t tell which direction I’m going in. Most of my current health issues...
View Article[cancer] Still here, still overwhelmed
Some basic nutrition and lifestyle issues got in the way of well, everything. They still are, but things get better. I had a major rebalancing of my medications, which has made me even more listless...
View Article[cancer] Still not much improvement
I continue miserable, and thus does everyone around me. Been home for a week, still have not managed to either have visitors or go out. Next week is the sixth anniversary of my onset of symptoms. We...
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